One step forward,one step back

Brady was doing really well.We have been in the hospital almost 4 months.We were finally hearing ramblings of the "H" word in a few weeks.He was eating by mouth which is huge.Thank you nocate nutra for making something he can finally eat.We were up to 3 times a day.He even made it to goal feed.

Yesterday he started vomiting again.It's not his normal vomiting though which is good.It's crazy when you have a chronically ill child that even though they are vomiting what they are doing now isn't as bad as usual.It seems he caught some kind of virus.Feeds are now stopped and we are waiting for him to get over this bug.

It is sad and frustrating because he was doing so well.He is even trying to sit up on his good days.Hopefully this is just a small bump in the road and he will still come home in a few weeks.

It is going to take time to get him home though because he is on 20 medicines,needs nurses,and as a fragile as he is you can't bring him home unprepared.

Long Overdue

I have been using Caringbridge more than the blog lately.I haven't updated in months.Brady went into the hospital in April.Brady can never just have a short hospital stay.He has had a broken line,2 line infections,and pneunomia.That is just the big things.He is getting over another line infection and the antibiotics should be done today.They say that his infections are not starting his gut so we have to be extra careful.We were using ethanol locks but that ran out so we are not doing vanc dwells.We are going to try feeds again tomorrow and pray that he tolerates.I'm going to do better about updating.