Saturday, July 21, 2012
Way too Long Without an update...
I didn't realize it has been that long since I have updated.The past few months have been very hectic.Brady has been in and out the hospital every month since my last post.He has been having a lot of stomach issues.Even though he has a gj he has been dealing with a lot of stomach pressure.They were suppose to do a seperate g and j but surgery wouldn't do it so he is stuck with the one he has.
He also got diagnosed with a neurogenic bladder.Brady was having a lot of problems with urinating but I never knew how the problem was until he went into the hospital and spent time in the ICU becauase of a UTI.It was one of the scariest times in my life.Brady has had many "close calls" but it was so hard seeing him fight this.He is now being cathed every 3 hours and is on medicine so he is doing well in that area so far.
He is also requiring a lot more oxygen.He was only requiring oxygen at night but he has breathing and retracting has gotten much worse over the past few months so he now he is required to wear oxygen and his apnea monitor anytime he is asleep.He sees pulmonary next month so hopefully we can get some answers to his breathing issues.He snores like an old man so something needs to be done.
Other than the hospital stays he is doing well.He still loves his Yo Gabba Gabba and is eating soft foods and drinking out an noisy cup.We are just taking it one day at a time.
I am going to do better this time at updating(I promise) :)