Such A Good Appointment Today!

Brady had a great neurologist appointment today.He was 13 lbs 11 ozs.He also is now 28 inches and the best part was his head has grown.It is now 39 inches.I'm am so happy.He has never weighed that much and his head circumference and length are a huge improvement.His neurologist was very pleased.She is still concerned about his stomach though.After he eats his belly swells and he gets really cranky.She said his stomach felt hollow and you hear the milk floating around in his stomach.She still thinks he want needs the feeding tube.I want him to get one but I have to find another doctor.After the horrible experience I had with the last GI I have to find a new one before I'll get him a tube.She is also worried about his stiffness.If it doesn't get better he'll have to get on muscle relaxers.Because of his neuropathy,they are going to test him for neuroaxomal dystrophy.I don't know much about that.I had never heard of it before today.He also still has no reflexes.They increased his seizure medication since he is growing.Overall it was a good appointment.I'm really proud of his progress.He has come such a long way.

Scoliosis Appt. and Cuddlebug

Brady had a scoliosis appt.I was nervous and dreading it.I thought that his curve was getting worst.His therapist have really been working with him though.They are trying to get him to work with the curve. During the appt. they said there wasn't a change and they actually think it's gotten a little better.I was so relieved.He goes back in 6 months and they say there is no need for bracing.I'm so happy about that.

Brady's cuddlebug arrived yesterday.He knew there was something different as soon as he got into it.He could see the world and he was happy.He loves it and I'm so glad he's a big boy.

Brady's cuddlebug is coming

I ordered Brady a cuddlebug while he was in the hospital back in November.It's an early intervention wheelchair.He was fit for it and got it customized a few months ago.It's going to be blue and brown with puppy dogs on it.They called today and said it will be delivered Friday.I'm so happy that he's going to have it.It's going to be so much easier to do more things with him.

He's also been doing great lately.He's been really social able lately.I just love how his personality is showing.He's eating more and cooing.He's even clapping or I say that he's clapping.He's becoming such a big boy.

Happy Boy

I've been really neglectful of the blog lately.Brady was sick was weeks.He had a cold he just couldn't get rid of.He's still a bit congested but he's been in a great mood lately.I love when I can see his personality.He has an infectious laugh lately.He just laughs at everything and I love it.He's been eating bites of food.It's not much but it's a start.I'm trying to give him bites of food three times of day and snacks and hopefully he'll catch on.He doesn't go to the doctor until Wednesday so I don't know his weight.He goes to the scoliosis doctor.Hopefully they'll start the bracing process but I don't know.I'm just enjoying my time with him.I'm glad he's showing his sweet personality.

Still sick

Brady has not been a happy boy all week.He is fussy,stopped up,and just overall miserable.I have been trying everything to make him happy but nothing is working.He isn't eating like he was before.He is still rolling over though.I'm happy because I'm glad he got that skill back.I just hope he starts to feel better soon because I hate it when he's sick.

Doctor appointment Today

Today Brady had an appointment with his opthamologist. We were there for 4 hours but they didn't tell me anything different.I did learn that he is finally tracking.That's a good thing because he has never done it before.She did say that his optic nerves are pale and small.I knew they were small but I never heard of them being pale.She wants to work with neurologist to do some test.I guess they want to see if they can see anything on an MRI but usually they don't find much.I just hope they can put everything together soon so they can figure out what is going on with him.

My Week so far

I think I figured out why Brady was a fussy butt a few days ago.He has 4 new teeth coming in.He has never taking teething well.He has about 12 teeth total.It's weird everytime I see them.He is so little and he won't take solids.Everytime he opens his mouth it's so funny to see all those teeth.

He had an doctor's appointment today.He was 12 lbs. 8 ozs.He gained 2 ounces.There was no change in height or head.I wasn't expecting any change though.They still want me to consider a tube.I would like to get him one for supplement.I just need to find a GI.He goes to the eye doctor Thursday.I hope they can tell me if he has any vision.I think he can see up close but I'm not really sure.

He is a joy lately when he is not fussing.He has rolled over a few more times and he is laughing all the time.I'm really enjoying seeing a personality in him.