Happy Boy

I've been really neglectful of the blog lately.Brady was sick was weeks.He had a cold he just couldn't get rid of.He's still a bit congested but he's been in a great mood lately.I love when I can see his personality.He has an infectious laugh lately.He just laughs at everything and I love it.He's been eating bites of food.It's not much but it's a start.I'm trying to give him bites of food three times of day and snacks and hopefully he'll catch on.He doesn't go to the doctor until Wednesday so I don't know his weight.He goes to the scoliosis doctor.Hopefully they'll start the bracing process but I don't know.I'm just enjoying my time with him.I'm glad he's showing his sweet personality.

Still sick

Brady has not been a happy boy all week.He is fussy,stopped up,and just overall miserable.I have been trying everything to make him happy but nothing is working.He isn't eating like he was before.He is still rolling over though.I'm happy because I'm glad he got that skill back.I just hope he starts to feel better soon because I hate it when he's sick.

Doctor appointment Today

Today Brady had an appointment with his opthamologist. We were there for 4 hours but they didn't tell me anything different.I did learn that he is finally tracking.That's a good thing because he has never done it before.She did say that his optic nerves are pale and small.I knew they were small but I never heard of them being pale.She wants to work with neurologist to do some test.I guess they want to see if they can see anything on an MRI but usually they don't find much.I just hope they can put everything together soon so they can figure out what is going on with him.

My Week so far

I think I figured out why Brady was a fussy butt a few days ago.He has 4 new teeth coming in.He has never taking teething well.He has about 12 teeth total.It's weird everytime I see them.He is so little and he won't take solids.Everytime he opens his mouth it's so funny to see all those teeth.

He had an doctor's appointment today.He was 12 lbs. 8 ozs.He gained 2 ounces.There was no change in height or head.I wasn't expecting any change though.They still want me to consider a tube.I would like to get him one for supplement.I just need to find a GI.He goes to the eye doctor Thursday.I hope they can tell me if he has any vision.I think he can see up close but I'm not really sure.

He is a joy lately when he is not fussing.He has rolled over a few more times and he is laughing all the time.I'm really enjoying seeing a personality in him.

I spoke too soon

Every time I think Brady is making progress he always has a setback.Today he has been extremely cranky.He cried all day.Nothing would sooth him.I tried giving him a bottle.He didn't want it.I tried Pediasure.He wouldn't drink it.I tried rocking him.He just cried.He has just been very unhappy.I even think he had a seizure today because he kind of zoned out while laying on the bed.He was having up to 5 seizures a day but he was doing better.I hate when he gets like this.Since he doesn't talk it's hard to just go off of cries trying to figure out what is wrong.He goes for a checkup on Tuesday but I don't know if there is much they can do for him.He doesn't go to the neurologist until March but I'm going to call Monday to see if they change or increase his seizure medicine.He just finally went to sleep.He wants to stay up all day lately but when he's up he is not in a very good mood.Hopefully this is just a phase and he will be in be in a better mood tomorrow.

Progress

Brady has actually been doing really well this week.He is getting a personality and eating more.I'm so glad he is finally eating.He's playing and more and I'm noticing a difference in him.I think he is going to start rolling over again also.He was rolling over when he was around 5 months but then his seizures started and he lost the abilities he had before his hospital stay.I still have hope for him.I think that there is a chance that he might be able to do some things.He's only 14 months old.I'm going to keep working with him and hope for the best.

I hate Doctors!!!

Well I took Brady to the GI doctor today.He was suppose to go to get a consultation for his feeding tube and to recheck his enlarged liver.It didn't go that way though.His doctor basically said there is nothing he can do for him.He said that Brady isn't going to grow.His brain damage is too severe and he has too much going on with him that there isn't anything he can for him.He said he won't give him a tube.He even told me to give him whole milk.He has severe milk and soy allergies.Why in the world would I give him regular milk.He said Brady is never going to get off the bottle and I'm wasting my money buying expensive milk.

I am so mad.This man has only seen my child twice and that was for 15 minutes.He doesn't know anything about my son.He said his Xrays  came back normal.He has a horrible curve because of scoliosis.I know his spine is not perfect.I'm just mad that a doctor can say that there is no hope for a 14 month old.He can still live a good life.I'm okay with him not being about see.I would love for him to be able to see me but I can deal with it.I'm okay with him not walking.I would love to see him run and jump but if it doesn't happen I'm fine.I'm okay with him being behind.He can always catch up.To tell me to take my son home and keep him fed and comfortable,I don't accept.I know children can make progress.There is no way I'm giving up on him.I'm going to prove that doctor wrong.