Sunday, November 21, 2010

I Wish I had A Magic Wand

I had Brady's care conference Wednesday.I was sick to my stomach the whole day.I hate those kinds of meetings.You are in a tiny room with all kinds of doctors making plans for your child.I know Brady has a long road ahead of him but every time I have one of those talks with the doctors it is always hard.The plan is for him to get the gj tube and do cycled TPN.It was what I was expecting but it is still hard.Even with all of Brady's diagnosis  I have always held out that he could get better.Maybe some test was wrong and later on he would come out of everything.I know that is not the case but I always hold onto the thought.

Thursday he woke up congested.In the matter of a few hours he was all junky and just not feeling  right.They did an x-ray and he has aspiration pneumonia. He has been miserable.He has to have oxygen and he has never needed it before.He is not happy at all.I just wish I had a magic wand and I could make everything all better.He is an innocent 2 year old.He should not have to go through all these test.He should not be hooked up to all these wires.His stomach is fill with cords.I hate seeing him in the hospital all the time.I know that things will eventually get better but it is so hard seeing your baby in the hospital all of the time.

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